Resources
The World of PKU
Screening Journal
Centers for Disease Control and Prevention
Newborn Screening: Public Health Stories (CDC)
Journal Sentinel “Deadly Delays” newspaper series
University Archives, State University of New York at Buffalo
National Newborn Screening and Global Resource Center (NNSGRC)
“NewSTEPs” Newborn Screening Technical assistance and Evaluation Program
The Museum of disAbility History, a project of PEOPLE, Inc.
Books
Robert Guthrie: The PKU Story:
A Crusade Against Mental Retardation
by Jean Holt Koch (Hope Publishing House, 1997)
The PKU Paradox: A Short History of a Genetic Disease
by Diane B. Paul and Jeffrey P. Brosco
(Johns Hopkins University Press, 2013)
Newborn Screening: How One Simple Test Changed Lives, Science and Health in America
(Association of Public Health Laboratories, May 2013)
Special Thanks
ESPKU (European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria).
Robert Guthrie Memorial Dinner
Dr. Harvey Levy
Dr. Brad Therrell
William Offhaus, Special Collections Assistant, University Archives, State University of New York at Buffalo
Sarah Chamberlin Executive Director, National PKU News, pkunews.org, Co-founder, howmuchphe
The Guthrie Family also wishes to acknowledge
Buffalo Artist Barbara Insalaco for her wonderful portrait of Captain Bob
FAIR WINDS!
