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PKU News

The World of PKU

Screening Journal

Baby’s First Test

Centers for Disease Control and Prevention

Newborn Screening: Public Health Stories (CDC)

National PKU Alliance

Journal Sentinel “Deadly Delays” newspaper series

The March of Dimes

University Archives, State University of New York at Buffalo

National Newborn Screening and Global Resource Center (NNSGRC)

“NewSTEPs” Newborn Screening Technical assistance and Evaluation Program

The Museum of disAbility History, a project of PEOPLE, Inc.

Welcome to E.S.PKU


Robert Guthrie: The PKU Story:
A Crusade Against Mental Retardation
by Jean Holt Koch (Hope Publishing House, 1997)

The PKU Paradox: A Short History of a Genetic Disease
by Diane B. Paul and Jeffrey P. Brosco
(Johns Hopkins University Press, 2013)

Newborn Screening: How One Simple Test Changed Lives, Science and Health in America
(Association of Public Health Laboratories, May 2013)

Special Thanks

ESPKU (European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria).

Robert Guthrie Memorial Dinner

Dr. Harvey Levy

Dr. Brad Therrell

William Offhaus, Special Collections Assistant, University Archives, State University of New York at Buffalo

Sarah Chamberlin Executive Director, National PKU News,, Co-founder, howmuchphe

The Guthrie Family also wishes to acknowledge
Buffalo Artist Barbara Insalaco for her wonderful portrait of Captain Bob


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